WEDNESDAY, JUNE 18, 2008 09:52 PM, CDT
Subscribe to journal update notification
Avastin/CPT-11 Round 1 Complete, Back Home
Entry by TR from TN
Greetings Jen Nation!
Seven hours all told today at the Vanderbilt Clinic. We were in the Infusion Clinic where the actual IV chemo is administered for the better part of five hours.
Everyone is very nice. They have a volunteer board that bakes treats and donates refreshments for patients and their families.
Dr. Edgeworth came by for my sister to sign some permits. She has great confidence in him; she said he memorized her entire 9-year history before their first appointment, not even bringing in a chart! She’s been blessed with a string of talented doctors — Bingaman & Stevens (Cleveland), Nabors & Beth at UAB, and Edgeworth at Vandy.
She may experience some mild side effects with the blended Avastin/CPT-11, most simply alleviated by common OTC drugs. As her system processes it, it may reduce swelling and allow her to cut back on steroids. Doc had an encouraging twinkle in his eye, saying he thought this would work.
We stopped on the way home in Murfreesboro, having sandwiches at Jason’s Deli and a treat from Marble Slab Creamery. I’ll never forget savoring ice cream with her and my Mom in the setting sun, getting away from our cares if only for a fleeting moment.
On the way to a fun dinner last night at Olive Garden, she made a poignant observation: “I can’t remember not being sick.” Not a complaint — NEVER … just a gut check for a fighter digging down for another burst. Nine years is a long time, but it’s been blessed with many miracles that we too often neglect to rejoice.
We’re hopeful she can take her long-awaited vacation to Chautauqua (NY) with no cause for concern. Her greatest discomfort tonight is from the port, where they actually had to cut muscle to bury it in her chest. But it will make future doses every three weeks much easier without needles.
Your prayers and support continue to make the difference. This thing doles out punishment every day, but we keep finding reasons to fight. – TRH




